Category Archives: General

Overview of the medical and research literature of Marfan Syndrome in 2016-2017

Lauriane Janssen has collected a lot of the newest medical and research literature in this document with links to where you can find more information.

MEN online Report 2017

Now the report is available here. Please have a look into the activities of the member countries.

Young Adults Report 2017

Now the report is available here. Please have a look into the activities of the member countries.

Report YA meeting 2014

The report of the Young Adults Meeting 2014 in Klagenfurt, Austria is now online. http://www.marfan.eu/wp-content/uploads/2012/03/Final-Report-YA-2014.pdf  

EMSN online report 2013

Now the EMSN online report 2013 is available. Please have a look into the activities of the member countries.

Report of Young Adults Meeting 2013

Here you get the very enthusiastic report from Mira:  2013_Young_Adults_report

New coordinating committee elected

The assembly at the EMSN 2013 meeting in Zürich has elected a new coordinating committee (CC). In the new CC, there are people from the national organisations in Sweden, Austria, Germany, and Denmark. The new chair will be Martin J. … Continue reading