The EMSN Meeting 2011 was held in Eutin, Germany, 11-14 August 2011, with delegates and guest from Austria, Belgium, Denmark, France, Germany, the Netherlands, Norway, Sweden and Switzerland. The EMSN Meeting 2011 included a Young Adults Meeting (age 18-28) with participants from four countries.
We are happy to report that Sweden is now a member of the EMSN, and that Austria considers joining after attending their first EMSN Meeting as guests. The Annual Assembly furthermore decided to have the EMSN Meetings every second year from now one. The next meeting will be in Switzerland in 2013.
The EMSN Meetings are all about exchanging and sharing of information and experience, through presentations and inputs from the members and through the numerous conservations amongst the participants. In additions, the programme included medical presentations from German specialists on the topics vision and life quality, Marfan and sleep apnoea, and the Ghent nosology. A rare disorder centre in Norway presented their on-going study on “Living with Marfan syndrome”, and a collaboration with the German specialists was established.
We also celebrated the 20th anniversary of the EMSN with a dinner with invited guests of honour. We were very happy that Diana and Robin from the UK, who founded and run the EMSN for the first years, and the former Chairs Helga from Norway and Béatrice from Switzerland could join us in this celebration.