Now the EMSN online report 2013 is available. Please have a look into the activities of the member countries.
Here you get the very enthusiastic report from Mira: 2013_Young_Adults_report
The assembly at the EMSN 2013 meeting in Zürich has elected a new coordinating committee (CC). In the new CC, there are people from the national organisations in Sweden, Austria, Germany, and Denmark. The new chair will be Martin J. Skov from the organisation in Denmark. The CC will coordinate network activities with institutions and participating organisations, especially regarding the EMSN informal meeting in connection with the Marfan Symposium in 2014, and the next EMSN bi-annual meeting in 2015.
Please save the date for the 9th International Marfan Symposium in Paris:
Invitation to the medical part of the EMSN Meeting 2013
The EMSN Meeting 2013 will be held in Zürich, Switzerland in September. Our host is the Marfan Foundation (Switzerland) and they plan to collect world wide specialists to this year’s meeting.
We would therefore like to invite additional guests to attend the medical part of the meeting, to hear from, meet and discuss with specialists from the US and Europe. Guests who are only attending the medical part do not need to be connected to an EMSN member organisation.
As of 1 December 2012 the organization “Marfan Initiative Österreich” is an official member of the European Marfan Support Network! We are very happy to include Austria in our network which now has 12 members from 11 different countries. The Austrian Marfan organization is an active young organization founded in 2007. They have already participated in the EMSN 2011 Meeting as guests and in the EMSN 2012 Young Adults Meeting.