History

The Marfan Europe Network was founded on July 12th, 1991 in Ghent, Belgium with six countries (Belgium, France, Germany, Switzerland, The Netherlands and UK). It was the first time that lay people could attempt the meeting of “European Heritable Connective Tissue Disorders”. It was given the name “European Marfan Support Network (EMSN)” and was renamed in 2014.

  • 1992, October: EMSN meeting in Holland, Hartenark centre, Bilthoven
  • 1992, November 2nd: 2nd International Symposium of the Marfan Syndrome in San Francisco and setting up the “International Federation of Marfan Syndrome Organisations”, IFMSO.
  • 1993, August: EMSN meeting in Switzerland, Basel
  • 1994, August: 3rd International Symposium of Marfan syndrome in Berlin and simultaneous the EMSN and IFMSO meeting.
  • 1995, August: EMSN meeting in Norway, TRS centre, Oslo.
  • 1996, August: 4th International Symposium of Marfan syndrome in Switzerland, Davos with the participation of patients and round table discussions with doctors and patients. The EMSN and IFMSO meetings were held after the symposium.
  • 1997, August: EMSN meeting in Denmark, Billund.
  • 1998, August: 5th International Symposium of the Marfan syndrome in Finland, Helsinki. EMSN and IFMSO meetings were held after the symposium.
  • 1999, August: EMSN meeting in Smolenice (Bratislava), Slovakia. Founding of the EMSN Youth Group.
  • 2000, August: EMSN meeting in Paris, France.
  • 2001, August: EMSN 10th anniversary meeting in Brussels, Belgium. Spain joined the EMSN.
  • 2002, September: EMSN meeting in Bilthoven, The Netherlands
  • 2003, September: EMSN meeting in Fulda, Germany. Starting the project “International Emergency Card”.
  • 2004, September: EMSN meeting in Alicante, Spain
  • 2005, September: 7th International Symposium, Ghent. The EMSN and IFMSO meetings were held during and after the symposium.
  • 2006, September: EMSN meeting in Castelnaudary, France
  • 2007, September: EMSN meeting in Bern, Switzerland. EMSN is invited to the celebration of the 20th anniversary of the Marfan Foundation Switzerland.
  • 2008, September: EMSN meeting in Leiden, The Netherlands.
  • 2009, August: EMSN meeting in Bergen, Norway.
  • 2010, September: EMSN meeting in Ebeltoft, Denmark. UK and Spain left the EMSN.
  • 2011, August: EMSN meeting in Eutin, Germany. Celebration of the 20th anniversary of EMSN. Sweden joined the EMSN. Austria is candidat.
  • 2012, August: Young Adults Meeting 2012 in Leuven, Belgium.
  • 2012, December: Austria becomes member of EMSN.
  • 2012, December: Voting for a new mission statement closed.
  • 2013, September: EMSN meeting in Zurich, Switzerland (including Young Adults Meeting). Decision for renaming the organization to Marfan Europe Network.
  • 2014, August: Young Adults Meeting in Klagenfurt, Austria
  • 2015, October: Meeting in Kalmar, Sweden (including Young Adults Meeting).
  • 2017, September: Meeting in Leiden, Netherlands (including YA Meeting).

 

 

 

 

 

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