The meeting was held in Leuven in the Youth Hostel “de blauwput” (www.leuven-hostel.com), Belgium from 23-26 August 2012.
The criteria to join the meeting are:
- to be in the 18-28 age group
- to be marfan or have a “marfan related disorder”
- to live in Europe
- to be able to communicate in English
The activities that will be organized during the meeting will go from group discussion, to medical and “practical” medical presentation and of course, leisure activities.
The price has not been set yet, be we are putting everything together to keep it as low as possible.
If you would like to join the group or get more information, please contact Lauriane Janssen firstname.lastname@example.org