We are a coalition of Marfan Syndrome patient organisations within Europe, aiming to support and encourage each other by exchanging and sharing information.
Marfan Syndrome
Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. (*).
The motto of the Marfan Europe Network is: “TOGETHER WE CAN!”
