Together
we can
Together we can – also in Luxembourg!
The Marfan Europe Network’s biennial meeting is ongoing in Luxembourg during the 17 th – 20 th September 2026.
In the meeting’s programme there are lectures of The PEARS procedure (Personalized external aortic root support) by Tal Golesworthy, Holistic Health: Finding balance between body, mind and emotions by Dr. Warren Ashley, From one gene to a personal care plan by Dr. Guillame Jouret and presentation of The 101 Genomes by Ludivine Verboogen and Romain Alderweireldt.
It’s always productive and important to strengthen the social connections between the member countries. We feel good vibes, motivation, inspiration to be together with friends.
Marfan & Loeys-Dietz
The Marfan Europe Network is not only dedicated to people with Marfan syndrome but also to those living with Loeys-Dietz syndrome. Both conditions share similar challenges, and by joining forces we create a stronger community that offers support, reliable information, and advocacy for everyone affected by connective tissue disorders.
Together we can
Our motto “Together we can” is a powerful message because it reflects the strength of unity across borders.
Living with Marfan syndrome or related disorders can feel isolating, but by working together — patients, families, experts, and organizations — we can share knowledge, support one another, and drive progress in care, awareness, and research.
Alone the challenges are great, but together we can make a real difference.
