| Graz | Klin. Abteilung für pädiatrische Kardiologie (Center for children and adults) |
Univ.-Prof. Dr. med. univ. Daniela Baumgartner Medizinische Universität Graz Auenbruggerplatz 34/II, 8036 Graz |
Tel: +43 316 385 83669 |
| Innsbruck | Marfan Ambulanz für Kinder und Erwachsene (Center for children and adults) |
Dr. Thomas Karall Univ.-Klinik für Pädiatrie III Universitätsklinik Innsbruck Anichstraße 35, 6020 Innsbruck |
Tel: +43 50 504 234 81 oder: 43 512 504 23481 |
| Wien | Kinder Marfan Ambulanz am AKH Wien Universitätskliniken (Center for children only) |
Doz. Dr. Christiane Pees Währinger Gürtel 18-20, 1090 Wien |
Tel:+43 01 40400 3290 |
| Wien | Herzchirurgie, Krankenhaus Nord, Wien (Center for adults only) |
Prof. Dr. Martin Grabenwöger / Dr. Harald Pisarik Brünner Straße 68, 1210 Wien |
Tel: 01 27700 4308 |
Austria
There are 4 Marfan centers. One in Vienna has started in Spring of 2020.
Belgium (Wallonia)
In Belgium, there is no officially recognised Marfan expertise center. There are 4 places where Marfan Syndrome is well known and a diagnosis can be established, clinically and with the help of specialists and geneticists.
| Brussels | UCL- St Luc multidisciplinary expertise center for diagnosis and follow-up for children and adults. |
Prof. Th. Sluysmans (paediatric cardiology), Prof Revencu ( genetics), Dr. S. Pierard (adult cardiology). UCL- St Luc. | This has been set up about 10 years ago thanks to the patient association. All patients can be examined in one morning by a cardiologist, orthopaedic surgeon, ophthalmologist, geneticist and sometimes other specialists who then get together to discuss and set the path for follow-up. |
| Ghent | University of Ghent (UZGhent). The genetic lab that centralises all blood samples from all over Belgium for the genetical diagnosis. Although Ghent is in Flanders, the Wallonian organisation has very strong ties with them. |
Prof Julie DE BACKER (genetics and cardiology) and Prof Anne DE PAEPE (genetics) University of Ghent (UZGhent) |
Tel: – |
| Liège | CHU-Liège | Prof N. Sakalihasan, (cardiac surgery), Dr. E. Docampo Martinez (genetics) | Tel: – |
Denmark
There are 2 university hospitals where Marfan patients are followed.
| Aarhus | Center for Sjældne Sygdomme | Aarhus Universitetshospital Palle Juul-Jensens Boulevard 99 8200 Aarhus N |
Tel. +45 78451474 (10.00 – 12.00) E-mail: css@rm.dk |
| Copenhagen | Center for Sjældne Sygdomme | Afsnit 5004 Opgang 5, stuen Juliane Maries Vej 6 2100 København Ø |
Tel. + 45 35455003 (08.00 -15.00) E-mail: css-rigshospitalet.rigshospitalet@regionh.dk |
Finland
There are no specific Marfan-centers but the caring of Marfan patients is centered in the 5 University Hospitals. VASCERN in Finland is centered in The University Hospital of Helsinki.
| Helsinki (Helsingfors) | HYKS, Meilahti, Mejlans (The Central University Hospital of Helsinki) | ||
| Kuopio | KYS, (The University Hospital of Kuopio) | ||
Finland
There are no specific Marfan-centers but the caring of Marfan patients is centered in the 5 University Hospitals. VASCERN in Finland is centered in The University Hospital of Helsinki.
| Helsinki (Helsingfors) | HYKS, Meilahti, Mejlans (The Central University Hospital of Helsinki) | ||
| Kuopio | KYS, (The University Hospital of Kuopio) | ||
Slovakia
There are no recognised Marfan Syndrome centres. However, the Slovak Marfan Association has a list of doctors / specialists from regions dealing with patients with Marfan sy.