Members

Austria’s dedicated support group for people with Marfan and related disorders. Offering information, exchange, and strong support through online and offline meetups. Has a special group for young adults.

Marfan Hilfe (Deutschland) e.V. is Germany’s only nationwide self-help organization dedicated to Marfan syndrome and related connective tissue disorders. It uniquely combines patient support with research promotion and close cooperation with specialized medical centers.

The nationwide patient advocacy group powering connections, awareness, and support for individuals and families living with Marfan syndrome and related conditions. Since 1982, CMN brings peers together, informs the public, fosters stronger medical care, and champions patients’ voices locally and across Europe.

The Swedish Marfan Association (Svenska Marfanföreningen) is the national organization supporting people with Marfan syndrome and related conditions. It combines peer support, awareness, and health education with collaboration in research and specialist care.