Update from the “Marfan group” HTAD at VASCERN

Text by Lise Murphy co-chair of the patient group Update from the “Marfan group” HTAD at VASCERN   (As you probably know: HTAD means Heritable Thoracic Aortic Diseases at VASCERN – European Reference Networks for Vascular Diseases more info HTAD/VASCERN) New organisations can join here.   Our network of active patient advocates in HTAD (ePAG…