Text by Lauriane Janssen Tenth International Research Symposium on Marfan Syndrome The 10th International Research Symposium on Marfan Syndrome and related disorders was held from May 3rd to 5th 2018 in Amsterdam, The Netherlands. More than 200 specialists and researcher of Marfan syndrome attended this 3 days meeting, where all presentations were a 10…
A quick up-date from the “marfan-group” in the European Reference Networks, the HTAD (Heritable Thoracic Aortic Diseases) What is the HTAD? The network consists of clinicians specialised in Marfan and closely related diseases. The clinicians and their respective clinic have been approved on both a national and EU-level by official bodies. The European Reference Networks…
In 2019 we will be meeting in Drammen, Norway The Coordinating Committee is very pleased to announce that the Norwegian association (Marfanforeningen) will host our Marfan Europe meeting in 2019. The meeting will take place on 19-22 September 2019. The meeting will take place at at Hotel Scandic Ambassadeur Drammen in Drammen a little bit…
Marfan Patient day in Amsterdam – May 6th 2018 Please join us for the first The Marfan Foundation International Patient Symposium on Marfan Syndrome and Related Disorders to be held in Amsterdam featuring speakers from several countries including the US. This event offers both education and support programs that were created to increase your understanding…
New website promoting our work and our members In our network, we always try to communicate in the best way possible with our members. Now, we have a new tool for this. We just launched our new website at www.marfan.eu. The website makes an overview of our members, our network, our history, about Marfan Syndrome,…
Marfan symposium in Amsterdam 3-5 May 2018 The 10th International Research Symposium on Marfan and Related Disorders will be held in Amsterdam in the Netherlands May 3-5, 2018 www.marfan.org. As usual, the Marfan Foundation in USA, are the main organizer, now together with the Marfan Association in the Netherlands. The deadline for the reduced price…
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