Bakoumba: a Marfan Children Book

text by Lauriane Janssen   Bakoumba: a Marfan Children Book   A while ago, I was contacted by the French Association, asking if European Marfan associations would be interested in translating the Marfan Children’s book “Bakoumba” to European languages. The book is about a Marfan child that slowly realizes that he is very useful for…