Report YA meeting 2014
The report of the Young Adults Meeting 2014 in Klagenfurt, Austria is now online. http://www.marfan.eu/wp-content/uploads/2012/03/Final-Report-YA-2014.pdf
Young Adults Meeting 2014
The Young Adults Meeting 2014 was held in Klagenfurt, Austria. Please find information here.
EMSN online report 2013
Now the EMSN online report 2013 is available. Please have a look into the activities of the member countries.
Report of Young Adults Meeting 2013
Here you get the very enthusiastic report from Mira: 2013_Young_Adults_report
New coordinating committee elected
The assembly at the EMSN 2013 meeting in Zürich has elected a new coordinating committee (CC). In the new CC, there are people from the national organisations in Sweden, Austria, Germany, and Denmark. The new chair will be Martin J. Skov from the organisation in Denmark. The CC will coordinate network activities with institutions and…
Marfan Symposium 2014 in France
Please save the date for the 9th International Marfan Symposium in Paris: 2014-Save the date-Symposium-Paris
Guests may join the medical part in 2013
Invitation to the medical part of the EMSN Meeting 2013 The EMSN Meeting 2013 was held in Zürich, Switzerland in September. Our host was the Marfan Foundation (Switzerland) and they collected world wide specialists to this year’s meeting. We would therefore like to invite additional guests to attend the medical part of the meeting, to…
EMSN has a new member!
As of 1 December 2012 the organization “Marfan Initiative Österreich” is an official member of the European Marfan Support Network! We are very happy to include Austria in our network which now has 12 members from 11 different countries. The Austrian Marfan organization is an active young organization founded in 2007. They have already participated…
Report of Young Adults meeting 2012 online
It was a nice idea and it was successful. Coming together and talking to each other can make a difference for your every-day-life. Young – Tall – Marfan? Look here!
Invitation Youth Meeting 2012
Dear members, dear young adults, The EMSN and the ABSM (www.marfan.be) were pleased to invite to the annual EMSN Young Adults Metting that was held from 23th till 26th August 2012 in Leuven, Belgium. You will find all the necessary information about the stay in the joined invitation. The event will be sponsored by the…