Young Adults Meeting 2014
The Young Adults Meeting 2014 was held in Klagenfurt, Austria. Please find information here.
EMSN online report 2013
Now the EMSN online report 2013 is available. Please have a look into the activities of the member countries.
New coordinating committee elected
The assembly at the EMSN 2013 meeting in Zürich has elected a new coordinating committee (CC). In the new CC, there are people from the national organisations in Sweden, Austria, Germany, and Denmark. The new chair will be Martin J. Skov from the organisation in Denmark. The CC will coordinate network activities with institutions and…
EMSN has a new member!
As of 1 December 2012 the organization “Marfan Initiative Österreich” is an official member of the European Marfan Support Network! We are very happy to include Austria in our network which now has 12 members from 11 different countries. The Austrian Marfan organization is an active young organization founded in 2007. They have already participated…
Young Adults meeting 2012
The meeting was held in Leuven in the Youth Hostel “de blauwput” (www.leuven-hostel.com), Belgium from 23-26 August 2012. The criteria to join the meeting are: to be in the 18-28 age group to be marfan or have a “marfan related disorder” to live in Europe to be able to communicate in English The activities that…
EMSN meeting 2011 in Eutin, Germany
The EMSN Meeting 2011 was held in Eutin, Germany, 11-14 August 2011, with delegates and guest from Austria, Belgium, Denmark, France, Germany, the Netherlands, Norway, Sweden and Switzerland. The EMSN Meeting 2011 included a Young Adults Meeting (age 18-28) with participants from four countries. We are happy to report that Sweden is now a member…