Dear MEN members,
THE DARK SIDE OF THE DISEASE
The revised Ghent nosology presents the classical features of Marfan syndrome. However, behind its familiar face, Marfan syndrome hides less well-known features. The German Marfan Organization listed unusual symptoms and clinical experts reviewed the literature on clinical features of Marfan syndrome not listed in the Ghent nosology. We encourage you to read this interesting study by following this link.
RARE DISEASE DAY: FEBRUARY 29
Tell us how you are planning to get involved in this yearly international event and don’t hesitate to share it on your Facebook Page or directly with us and we will communicate about each of your initiative to our European community.