Marfan Europe Network has two new members
We are very happy to include UK and Luxembourg to our network which now has 15 members from 14 different countries.
Marfan Trust, the Marfan association from UK, was founded thirty years ago in 1989 and one association of the UK (now merged with Marfan Trust) was a founding member of MEN (aka EMSN). Marfan Trust is highly motivated to provide research, education and support to their 2200 supporters throughout the UK (England, Scotland, Wales, and also Ireland). The application of Marfan Trust to MEN was unanimously accepted by all voting members.
Den-i, the Luxembourg Marfan association, is a very energetic association which was founded in 2006. As a small Marfan Association they depend a lot on the connections in European and International networks. So they were looking forward in joining MEN. Their application too was unanimously accepted by all voting members.
You can find more information on both association in our member section.
If you know other European Marfan Associations that would be interested in joining our Network, please let us know, TOGETHER WE CAN!