written by Elena De Moya Rubio

Marfan Awareness day in Spain

Did you know that tomorrow (December 3rd) is Marfan Sydrome Awareness Day in Spain?

The Spaniards have been using this day for a long time to draw public attention to the Marfan syndrome. This year, they want to do it by posting photos of hearts shaped with our hands.

Are you joining? It would be great to make this day a European or even International Awareness Day.

It would be nice if we all use the same hashtags and a page that explains Marfan, be it Wikipedia or that of the Marfan Association in your country or another one. Of course, if you think of other hashtags or you are not ok with these, you can add or omit them. Only “MarfanHeart” would be 100% desirable:

#MarfanHeart
#Marfan
#MarfanAwareness
#SíndromedeMarfan
#MarfanSyndrom
#divulgación
#awareness
#Öffentlichkeitsarbeit
#enfermedadespocofrecuentes
#rarediseases
#selteneErkrankungen